My Covid-19 Vax Nightmare

An Inconvenient Patient After Pfizer Shot 2

Pre-existing Systemic Lupus Patient After Pfizer Shot 2:

Myositis
Vasculitis
Vascular Neuropathy
Vision/eye muscle
Cutaneous Lymphocytic Vasculitis. Chilblains
Iron Deficiency Anemia
Scleroderma
Psoriasis w secondary staph

On the bright side I’m getting better every day. 😊It’s been a difficult year and a half.

Here’s my story… !

I’ve had lupus since 2010. It was managed pretty well on plaquenil, cellcept, meloxicam, steroids as necessary (and alot of steroid creams) UNTIL I had Pfizer Shot 2. All h#ll broke loose!

Long story short… My rheumie referred me out with myositis to a neuromuscular specialist who diagnosed me with myositis and referred me back to my rheumatologist.

Rheumatologist couldn’t identify my rash so he referred me out to my dermatologist. I had a skin biopsy determined to be leukocytoclastic vasculitis by my derm who immediately referred me back to my useless rheumatologist.

I had a hyperactive immune response to the vax and was referred out to 12 separate specialists.

It’s been a nightmare of severe symptoms (lost mobility, inflammatory arthritis, 4th cranial nerve palsy (not a stroke repaired by eye muscle surgery) muscle weakness and horrific stiffness muscles lower spine, gastrointestinal issues, multiple tendonitis, carpal, 16 labs, 6 mri’s, 3 cat scans, 2 iron infusions, endo & colonoscopy, 8 xrays, an ER visit, physical therapy and 12 different specialists (derm, neuro, hematologist, vascular specialist, gyno, 2 gastroenterologists, 2 colon specialists, podiatry, ophthalmology, neuromuscular) and all of them referred me back to rheumatology with myositis & vasculitis. Duh.

He then misdiagnosed me with nr-axspa. He put me on a tnf blocker which didn’t work and I had a paradoxical reaction and broke out in severe psoriasisform. My skin is permanently damaged now.

I am waiting to see an immunologist to put the whole picture together.

I am finally improving no thanks to any of these morons (on steroids, rituxan, yoga, nsaids, muscle relaxers, less meds more natural supplements & better food choices). It has taken a YEAR. I thought I was going to die. My hematologist thought I had cancer (cll), colon specialist thought I had crohn’s, GP thought it was HIV and neurologist thought I had a stroke. All were proved wrong. Every one of them.

I now have “doctor ptsd” and only go if I have to, to get refills. That’s about all they’re good for. It was my anger at being gaslit that gave me the motivation to get better.

Pix: Vasculitis after Pfizer Shot 2 https://imgur.com/a/crXSHI4

Eye myositis https://imgur.com/a/yh93qEI