3 Easy Steps To Find The Right Doctor!

lifechangeWhy is the right doctor important?

You MUST want to follow your medical plan in order to have the most quality of life when you’re living with chronic conditions.  In order to do that you MUST WANT to live up to your physician’s expectations based on your treatment plan.  If he/she doesn’t have expectations of your disease and your health, then you have NO PLAN.   No PLAN?  Get one!  Here’s how:

one

 

  1.  The Appointment

Bring the FOUR P’s for your PLAN:  Pad, Paper, Pen & a Person.

This shows you mean business.  Your here to write down your medications, the times you take them, what to do if they are causing side effects or need adjusting, to bring medical issues to your doctor’s attention (try & keep them down to 3), and to listen, learn & make a list (The THREE L’s) to bring some improvement into living with your chronic condition!

Bring someone with you to your appointment, they are your BACK-UP.  They are there to do everything you are doing & to share notes with afterwards!  Bringing someone with you to your appointment can make all the difference- some physicians may take their questions more seriously than if you asked it.  People who know you and your symptoms may not be as afraid to tell the doctors what and how intense some of the symptoms you are having REALLY ARE!

two

2.  What if your doctor still doesn’t seem to be listening?  Make an appointment for one reason, and one reason only.  To talk.  Q & A time.  You can even ask the doctor to see you AT HIS or HER DESK!

“Why?” you ask?  This shifts the dynamic of the appointment in several important ways!

It puts you, the patient,  eye to eye with your physician- it reinforces that you and your doctor are a TEAM with one goal in mind:  YOUR SUCCESS at living the best life you can under the circumstances of having compromised health.

It shows your physician that you are serious about your health!  And that’s something ALL DOCTORS WANT TO HEAR!  This will not only impress your physician, but it will bring you closer together as a TEAM.

And last but not least-

three

 

3.  The Follow Up:

Without actually following up with your doctor, all your hard work can go down the drain!

This is the time where you make an appointment with your doctor to discuss how the medications are working, the intensity of your symptoms and any new symptoms.  If you’ve done your job your physician is now attentive to you and your health goals.

The RIGHT DOCTOR can make all the difference in your efforts for quality of life.  When you have a doctor who believes in you- you will try harder!  It really makes a difference!

If you’ve spoken to your doctor and you aren’t getting that “team vibe”, and it’s more than “he seems too busy” or “he’s having a bad day” kind of thing, it may be time for hiring a new one!  Yes, your physician works for YOU.  YOU are paying HIM.  And don’t feel bad, a good fit is very important to your success.  Doctors are like night and day., they truly are.  No one is alike.  Feel free to go so far as to INTERVIEW your doctor before you commit to being a patient at his/her office!  You are ENTITLED to choose your doctor! After all, there is nothing more important to you than YOUR HEALTH!

 

 

 

 

When you get home ORGANIZE your medications.

 

Advertisements

How To Find a New NORMAL & Change Your Game!

otherside
What you once took for granted (walking, working, taking care of family & yourself) can suddenly become difficult when faced with any chronic disease & chronic pain.  What you once did effortlessly can start to look like a mountain to climb when managing illness-so what do you do?

Well, first you examine your status honestly.  You assess your abilities. Here’s some of those questions you may be asking yourself-and some suggestions to help you find a NEW GAME to make them happen!  After all, life isn’t going to stand still-the kids still need to eat, the house still needs cleaning & stocking, and very likely-this means you MUST adapt.

FINANCIALLY SPEAKING!

Can you work, but not reliably?  You may not be able to punch a clock any longer-but you’ve got some energy and love for keeping some part of your career in your life? You HAVE OPTIONS but you must make them happen!  They aren’t going to come to you-you must prepare!

You may want to apply for social security disability.  You are entitled to the money you put into the system if you can no longer work or earn what you used to because of chronic illness.  You can apply even if you still work as long as you do not make over $1020 monthly. It’s time-consuming but do-able.  You can apply online at http://www.ssa.gov.  You don’t need a lawyer to apply-and most lawyers actually want to wait until you get your first denial to take your case-so applying is the first step.  Remember-this isn’t an easy or immediate solution.  This is thinking ahead for your future-it may take up to 3 years to get approved (no guarantees either) but stay vigilant. It’s usually a matter of WHEN, not IF that you will be awarded SSDI. So hang in there-and get started!

Now that your thinking long term-you can think short term.  What about NOW, what about the sick days, the doctor appointments, the unreliability factor in your work or job performance & attendance.  Well-I suggest take it head on.  Ask for part time and keep records of your physical health and lack of work ability.  This will be important to your SSDI case if you have applied.  

Asking for less hours is a necessary tool to keep your stress levels down and your disease symptoms minimized.  It’s a MUST.  You may end up surprised that working less hours brings you better health management.  If you can take your work home, ASK!  You never know unless you bring it to your boss’s attention-if you are working in an occupation that you can be productive from home-making your own hours can take away that issue of not being able to do a 9 to 5!  It’s always worth a try!  If possible, you may want to consider working as an independent contractor-this way you can continue your work at your own pace-and from home, where it can be much easier to manage your health, it keeps you in the career you love, and continues to bring in an income!  If there was ever a time or reason to give being independent a shot, THIS IS IT! If the company you work for or your occupation doesn’t offer a “work from home” alternative-maybe spend this time looking for one.

For immediate financial needs if you reduce your hours or find yourself out of work due to health issues is to apply for state help.  Food stamps are usually available on an emergency basis, you can apply online in most states and many cities have community services that might be able to help pay rent and utilities.  Churches and synogogues can be very helpful assets as well.  You may be able to find roomates to share expenses, caregiving opportunities or bartering options!

Once you’ve got your long term and short term financials down-it’s time to manage your home, your family and your disease.  Once again, you’ve got to change your game!

MANAGING YOUR HEALTH!

Get your doctors and specialists in order.  Make a folder for all your medical records (labs, doctors notes, etc) and keep it updated. This is two-fold. One-it will be necessary for your disability case later on, and Two-you can better coordinate your healthcare this way.  Bring your newest labs, tests, dx’s & list of meds to all your appointments.  This shows your docs you mean business and your taking your care seriously.

Ask questions!  If you need better pain control, it’s time to get that referral to a pain management specialist.  They can offer ways to manage pain that go beyond simply taking medications. There are procedures, cortisone shots, nerve blocks, and surgeries that can make your quality of life BETTER!  Now’s the time to take care of YOU!

Get all your specialist appointments caught up, see your general practitioner and get all the referrals you need to your specialists!  Now is the time.  Again, this will help you manage your chronic disease & give you the paperwork and info you need for your disability case.  Remember ASK QUESTIONS at your appointments!  If you are undertreated, or suffering, SAY SO, and ask.  It might be time to change your medications!  If your not feeling that your doctor is “on your team”-FIRE HIM/HER!  Docs are like night & day.  A good fit is very important. It can mean the difference in your attitude, your pain level, the very basis of how you feel about your disease can change with better quality control of your healthcare. Make those good choices NOW!

And lastly- HOW TO BRING IT HOME!

Time to manage your household.  The players have changed so your game must change too!  You must try to take control of the house by managing your time and abilities!  DELEGATE CHORES!  It’s all about the organization of the household and family working as a TEAM!

Cook meals in advance if you can and freeze them for another day.  Take your time preparing meals, doing the prepwork in stages.  (Cut up the veggies, then go sit down.  Go back & do some more, etc)  Get family to help out with the everyday homecare things like washing clothes, putting them away, walking the dog, doing the dishes, straightening the house!  You can no longer do it all.  You can even arrange a meeting with family and your doctor to discuss what he/her thinks of your abilities-having a knowledgeable professional to relate your needs to your family can go a LONG WAY!  This could be your doctor, your parents, anyone other than you!

It’s all about QUALITY OF LIFE and FINDING that QUALITY!   You may still be able to do the things you love, keep the career you’ve worked so hard for and wanted but in a different way!  You won’t know until you try, and you really have no choice if your taking care of a family!  Make it easier on YOURSELF!  You deserve it!

JJ

Can’t Anyone Make a Sandwich Around Here?

sandwichI admit it.  I’ve been reduced to eating what I can reach some days.  If you get up & A) forget what you got up for, B) Get interrupted & asked for something else..and then C) find out your energy is gone after you do so and D) Sit back down…you likely have Lupus.

Let’s see- what can I reach from my bed-throne?  Coffee from this morning.  Warm.  At least it’s not cold.  Yet.  Old pop, peanuts in the shell (I choked on one last night) so no, a can of pringles….it’s not looking good.  There’s no sandwich, not old, not fresh, not EVER.

What is it that’s so hard about making someone a sandwich anyway?  Two pieces of bread and some meat and cheese slapped in the middle.  Heck- I don’t even need pesky condiments on it-that would take a real workhouse to figure out.  I’ll settle for just the basics.  But nooooooooo.  There’s no sandwich in reach, there’s never a sandwich and noone is going to make me one.  Not now.  It seems, not ever.

That’s what having Lupus is like.  You never know from one minute to the other when it will be too difficult to get up and make a sandwich..your body is tired from fighting itself…it’s fighting off something every day, every minute, big and small, and it’s draining.  Sandwich draining.  Stupid Lupus.

Are they thinking I’m a queen or princess wanting to be waited on-“Bring her majesty a sandwich right now”, or “Her majesty desires a sandwich”…& that they have been reduced to peasants of royalty, constantly being put upon to serve? Over a sandwich?  Really?  It’s that hard to slap those pieces of bread on either side of meat and cheese?

So they have said, “let her eat old chips and old pop and warm coffee” in their defiance of me and my lupus.  Is that fair?  What’s a Lupus Princess to do?  So I wrote this “decree” –

New Discoveries for Princesses With Lupus

1. Thou shall let others go out alone- What that really means is it’s a lot easier to care for your royal self if your only getting and taking care of your royal self and the peasants are not around.

2.  Thou shall criticize others to take excellent care of themselves or else.  Why, you ask?  Easy.  How can you expect them to take awesome care of the royal Lupus Princess if they are not healthy.

3.  Last on the decree.  Thou shall buy only lunchmeat, cheese and bread from the grocery store.  This insures that a sandwich can be made and only a sandwich can be made.

Lupus is alot like that.  It is unpredictable, One minute you feel fine, the next a nerve gets trapped, a rash begins, nausea comes on, heads ache, ears fill with fluid, digits swell or some form of inflammation causes symptoms below the surface- connective tissue is the padding that keeps the human body together.  When it is attacked, these symptoms come on immediately..it’s not like a cold that starts with a runny nose..or a flu that starts with a queasy stomach.  Lupus has no middle, no beginning and no end.

And that is what makes us Princesses (and Princes).  So take out your bells, find yourself new decrees and make this life with Lupus work for YOU.    JJ



As a caregiver, how do I handle the unpredictability of lupus?

The following is from Lupus.Org (The Lupus Foundation of America)

LIVING WELL WITH LUPUS

Lupus is a disease of flare and remission, meaning that disease may be active one day and quiet the next. Usually flares last more than a day, and usually an increase in medication dose, or a change of medication, will be necessary to suppress the symptoms.

Due to the unpredictable nature of lupus you may need to adjust your responsibilities and priorities at times. Neither you nor your loved one with lupus should feel guilty about these disruptions to activities that you cannot control, but it is important to find strategies to cope.

In order to prepare for unpredictability it is important to build a contingency plan in addition to communication, smart planning, and strong disease management skills.

Educate

  • Understand and accept the unpredictable nature of lupus.
  • Explain lupus to your support system of family, friends, and co-workers so they are aware how this can translate into changes in plans and daily activities.
  • Provide your support system with educational materials and trustworthy websites on lupus; these efforts will allow them to understand the disease and how they can help.

Communicate

  • Get to know the point of contact for each physician who treats your loved one for lupus and any related health complications. This will help you keep in regular touch with them and will help in case of an emergency.
  • Be sure your support system knows about changes in your loved one’s health status, perhaps through a website or email thread, so that you can efficiently update everyone.

Prepare

  • Schedule home delivery of groceries to ensure there is food in the house when you cannot make it to the store.
  • Arrange for medications and other supplies to be delivered from the pharmacy so that no prescriptions lapse, and your loved one always has the necessary supplies without you having to go get them.
  • Have a babysitter or house-sitter on call to look after children and household responsibilities in case of an emergency.
  • Establish a carpool group to make sure younger family members can continue to participate in their regular activities.
  • Educate yourself about the disease to better understand what situations or triggers have led to a flare in the past.
  • If you are employed at an office job, try to bring home important documents you are working on, and if possible, arrange for remote access to your work computer system. This will allow you to stay connected in case your loved one with lupus needs you to stay home with them or needs to be taken to an unexpected appointment.
  • Help your loved one to keep a list of current medications, laboratory test results, physician contacts, and emergency numbers. See the article on Emergency Preparedness for specific tips and suggestions.
  • Encourage your loved one, based on their age and health status, to engage in proper self-care and disease management skills. This can mean better awareness of their lupus and a more effective tracking of symptoms in times of flare.

A Win- Win – WIN! #LUPIES – YOUR ANA is VALUABLE!

antibodies

A Credible $ Opportunity for Lupus Patients!  No kidding!

I met Shannon Coates-Layne at Access Clinical / Access Biologicals over a year ago-and found we were uniquely connected. Why?

Through ‪#‎Autoimmune‬ Disease- & through ‪#‎LUPUS‬!

But not because Shannon has lupus. Because Shannon has an opportunity for patients with lupus.

One of the most important aspects of treating autoimmune disease is to catch it as soon as possible. And that means better TESTING for autoantibodies. Something Shannon knows alot about!

And it makes perfect sense! It makes sense that patients like you & me with autoimmune disease produce the very antibodies that companies like Access Biologicals NEED to make better tests! Our plasma is VALUABLE.

So here is a unique opportunity for us to help others. We can’t usually “give blood or plasma”-except for reasons like THIS, the ones Access uses. Shannon has explained the process to me in laymans terms-she is non-assuming and efficient. She can explain the process to you as well!

Through ‪#‎plasmaphoresis‬ we have a WIN-WIN-WIN situation! Access Biologicals pays us for testing and plasmaphoresis-and we get an fda approved treatment (plasmaphoresis) to help control our autoimmune symptoms! And Access Biologicals is one step closer to developing better autoimmune condition testing!

You can write Shannon here on this page if you are interested! I would do it in a heartbeat if I could! It’s really a neat opportunity-don’t let it pass you up!
Hugs, JJ

https://www.facebook.com/AccessClinical

“Ur In” Luck- UTI’s and Autoimmune Conditions

image

With Reactive Arthritis and Systemic Lupus-UTI’s are common.  So is inflammation in your kidneys (glomerular nephritis), bladder (interstitial cystitis), and pretty much any mixed connective tissue anywhere is fair game.

After many years of being in remission from lupus nephritis (chronic kidney disease stage 3b)- I seem to be having issues again.  My doc thinks kidney infection but I’m not convinced.   With lupus it’s possible to have a crazy amount of white blood cells in your urine but no signs of infection (fever, vomiting, no nitrates or bacteria in your urine, etc) and that can mean simply destructive inflammation.

In cases like mine (and I’m certainly not alone with this issue) -further testing is indicated.  That flank pain and lower pelvic pressure can have several causes.  This coming up week I’ll have a cat scan and kidney biopsy and that will tell us more.

So if your having many UTI’s without bacteria showing up-your likely looking at inflammation!

Here’s some info on pelvic inflammatory conditions:

Interstitial Cystitis Facts:
From medicinenet.com

PBS/IC is an inflammatory disease of the bladder that can cause ulceration and bleeding of the bladder’s lining and can lead to scarring and stiffening of the bladder.The symptoms of PBS/IC are pelvic pain as well as urinary frequency and urgency.

PBS/IC has a variable clinical course, meaning that symptoms can appear and disappear over time. Moreover, the intensity of symptoms varies among individuals and even within the same individual over time.

The cause of PBS/IC is unknown, but abnormalities in the leakiness or structure of the lining of the bladder are believed to play a role in the development of PBS/IC.

The diagnosis of PBS/IC is based on the symptoms, an abnormal potassium sensitivity test (PST), and elimination of other conditions that may be responsible for the symptoms.

Treatment for PBS/IC most commonly utilizes heparinoid drugs to help restore integrity of the bladder lining along with other oral medications. Bladder distension and intravesical drug therapy are other treatments that may provide relief in PBS/IC.

Kidney Inflammation Facts:

There are different kinds of kidney inflammation.   Here are a few from Healthline.com:

Think of your kidneys as your body’s filters, a sophisticated waste removal system comprised of two bean-shaped organs. Every day, your hard working kidneys process 200 quarts of blood in a day and remove two quarts of waste products and excess water. If the kidneys suddenly become inflamed, you will develop a condition called acute nephritis. Acute nephritis has several causes and can lead to kidney

Interstitial Nephritis

In interstitial nephritis, the spaces between the renal tubules that form urine become inflamed. The kidneys swell from the inflammation.

Pyelonephritis

Pyelonephritis is an infection in the bladderthat travels up the ureters and spreads into the kidneys. Ureters are two tubes that transport urine from each kidney to the bladder, the muscular organ that holds urine until it passes out of the body through the urethra.

Glomerulonephritis

This type of acute nephritis produces inflammation in the glomeruli. Glomeruli are the tiny capillaries that transport blood and behave as filtering units. Damaged and inflamed glomeruli may not filter the blood properly.

In any case, with autoimmune disease be aware of your symptoms,  get regular urinalysis and blood work done, and see your doctor regularly.   🙂

Here’s a good video on Glomerulonephritis-

Glomerulonephritis:

SUNday “SUNlutions”: UV Exposure with Lupus; What you need to know!

lupusgrumpycat

malarrash - Copy  julierashesall IMG_20130130_164207(4)

  The SUN:  Sunshine on my shoulder does not make me happy!  LOL- Some of us with lupus are very sensitive to UV rays from the sun.  Our bodies respond to the sun as an attack-and send too many fighter cells to the skin that overdrives our immune system and causes damage.  I personally break out in itchy hives, vascular lesions, pemphigoid rashes, discoid spots, red hot malar rashes, scleroderma skin hardening and & it takes me months to recover.

Also-later our bodies cannot get rid of the dead cells-it’s a slow process-not the kind of recovery after sunburn kind of thing.  My solution?  Stay inside as much as possible.  I picked up a titanium umbrella at coolibar.com.  Here is some info from the LFA on the importance of being safe in the SUN!


UV Exposure: What You Need to Know

By Stephanie Watson

We talk a lot about the damaging effects of the sun’s ultraviolet (UV) rays. And we know how to protect ourselves outside with wide-brimmed hats, garments made from sun-protective- fabric, and, of course, sunscreen. But for some people with lupus, whether they’re walking through a supermarket or sitting in an office, the UV exposure from artificial light can be just as damaging and painful as too much time outside in the sun.

That’s why Hanan Hameen-Smith covers her skin in sunscreen and cloaks herself from head to foot in clothing when she leaves her house. “When I go to the gym for physical therapy, I have to wear sunglasses and a hat,” says the 33-year-old dance teacher, who lives in New Haven, CT. This elaborate costume often makes onlookers stare, she says. At home, she keeps the blinds closed and the lights dimmed. Turning off the lights and closing the blinds aren’t options when she teaches, so Hameen-Smith wears a hat then, too.

Hameen-Smith has lived under these conditions since 2010, when she was diagnosed with lupus. The disease has triggered a photosensitivity so severe that any exposure to UV light leaves a red, itchy rash on her skin. “It’s changed my whole life,” she says.

Why So Sensitive?

Exposure to UV light causes damage to everyone’s cellular DNA, explains Sabrina Newman, M.D., assistant professor of dermatology and internal medicine at George Washington University in Washington, DC. “UV radiation is what causes cell damage, regardless of whether it’s coming from the sun or a lamp,” she says.

It’s what happens next that differs. “In people with lupus, the cells are much more sensitive to the damage caused by UV radiation,” Newman says. “Once the cells are damaged, the immune system clears them, but people with lupus have a much slower clearance of these cells.”

The dead cells stick around in the body, triggering an immune system attack. “We have antibodies in our immune systems that typically are used to fight infection. But in people with lupus, the antibodies wrongly target proteins within normal cells and cause an immune reaction,” explains Benjamin Chong, M.D., assistant professor in the Department of Dermatology at the University of Texas Southwestern Medical Center in Dallas.

And photosensitivity is common in people with lupus: 40 percent to 70 percent of people with lupus will find that their disease is made worse by exposure to UV rays from sunlight or artificial light. Although the sun emits much larger amounts of UV radiation than indoor light, most people—especially those with lupus—tend to spend more time indoors, where they’re exposed for longer periods of time.

That’s not all: UV light can also activate lupus flares, triggering symptoms like fatigue, joint pain, tingling, and numbness.

When Ellen Schnakenberg ventures outside, her skin breaks out in a sunburn-like rash from UV exposure. Then she gets so ill that she has to retreat to her bed. “I’ll have a flare that will last for a couple of days to several weeks,” says the 49-year-old from Unionville, MO.

Cover Up

If UV light flares your lupus, you want to create a barrier between you and it:

  • Apply a liberal layer of a 30 SPF or higher sunscreen, one that provides broad-spectrum- protection against both UVA and UVB rays.
  • Wear tightly woven clothing that covers your skin, a wide-brimmed hat, and wraparound sunglasses to protect you from head to toe.
  • Choose light bulbs that have the lowest possible irradiance (intensity).
  • Cover fluorescent and halogen bulbs with light shields or glass that filters out UV rays. Look for shields with readings of 380 to 400 nanometers, which filters all types of ultraviolet light.
  • Use UV-blocking shades to cover windows and prevent sunlight from streaming in.
  • Consider tinting the windows of your car—check state laws on window tinting to see if a doctor’s note is required.

Cause and Effect

Some medicines can make you more photosensitive, too. Talk to your pharmacist or physician about the drugs you’re taking, especially:

  • Antibiotics, such as doxycycline (Doryx®) and tetracycline (Ala-Tet®, Panmycin®, Sumycin®)
  • Anti-inflammatory drugs, such as ibuprofen (Advil®, Midol®, Motrin®, Nuprin®)
  • Blood pressure medications, such as hydrochlorthiazide (HydroDIURIL®, Microzide®) and lisinopril (Prinivil®)

Methotrexate can also make some people more UV-sensitive. Yet stopping this medicine if it’s helping your lupus can be tricky. “That’s something you’d need to discuss with your doctor,” Chong says.

Another lupus medicine has the opposite effect. “Hydroxychloroquine (Plaquenil®) is actually protective,” Newman says. “Doctors will prescribe it for people who have photosensitivity.”

Change It Up

When you’re photosensitive, life requires a few modifications. Hameen-Smith has done everything from changing her sunglasses prescription to putting lower-wattage light bulbs in all of the lamps in her home. Tee Brown, 44, asked the Oklahoma City Fire Training Center, where she works as an office specialist, to make a few alterations to limit her exposure. Diagnosed with lupus and fibromyalgia in mid-2012, she noticed that the lights in her office were causing headaches and problems with her vision while working on her computer. “One of the solutions was to take out some of the lights above my desk,” she says. “It has worked a little bit, but not 100 percent.”

Schnakenberg also does what she can. She wears UV-protective long-sleeved shirts and pants, and she puts on sunglasses both inside and outside to shield her eyes from UV light. She has also applied UV-protective film to the windows of her house and tinted the windows of her car.

Schnakenberg is even bringing along her own incandescent light bulbs when she and her husband take a 30th-anniversary cruise to Alaska this summer. “You can’t stop life. You have to make choices,” she says. “I pick and choose the things I do, knowing there will be a price to pay, but hoping the price won’t be too high.”

More at the Lupus Foundation of America website HERE

Leave Your Ego At The Door- Join “The Lupus Channel” Community!

lupuschannelcommunity

Information is Power!  

My goal at “The Lupus Channel” Google community is to share all things Autoimmune-

Articles, Info, Blogs, Events, Videos & Vlogs, Webinars, Pinterest Boards, Support Groups, Research & Studies, etc on: Lupus Fibromyalgia Sjogrens Scleroderma MCTD (mixed connective tissue disease  & other autoimmune conditions

AND to help you connect to other people just like YOU & Me who learn from each other everyday by sharing experiences on how to most effectively manage our disease and have quality of life!  Nice to meet you & WELCOME!  JJ

A Special Note to Advocates:  Feel FREE to share your links to your groups, your posts & your contact on “The Lupus Channel”-I left my ego at the door- the objective is simply to reach the patients who need help!  TY so much!  I look forward to your posts!

Click HERE to JOIN “The Lupus Channel: Google Community


My goal is to share all things Autoimmune-Articles, Info, Blogs, Events, Videos & Vlogs, Webinars, Pinterest Boards, Support Groups, Research & Studies, etc on:

  • Lupus
  • Fibromyalgia
  • Sjogrens
  • Scleroderma
  • MCTD (mixed connective tissue disease
  •  & other autoimmune conditions

And to help you connect to other people just like YOU & Me who learn from each other everyday by sharing experiences on how to most effectively manage our disease and have quality of life!

Nice to meet you!  JJ

ps. I make lupus music videos to help spread awareness so that we can get closer everyday to a cure!  Here are my videos- HERE!

Hook up with The Lupus Channel on Twitter HERE!  And subscribe to my Blog HERE!
Also Please Join The Lupus Channel FB Group HERE!

My Personal Accounts
You can “Friend” me on FB- HERE!  And you can “Follow” me on Twitter- HERE!
Also-feel free to email me anytime HERE!

Your not alone with lupus or any autoimmune disease-there is tons of help out here!  Reach out TODAY!