Lupus Video Playlist!

Lupus VIdeo Playlist!

I put together this Playlist of hundreds of lupus videos! Feel free to check em out & Enjoy! Perfect for a rainy day!

 

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The #NERVE of THIS NERVE; #Amputation Failed! Not giving up!

The #NERVE of THIS NERVE; #Amputation Failed! Not giving up!

Yesterday I saw my surgeon-the amputation was a fail. The darn median nerve continues to curse my days and sleep. It went five days nonstop. Doc gave me no less than EIGHT lidocaine shots yesterday to shut it down. By the time he was done I couldn’t feel any part of my right foot EXCEPT THE NERVE PAIN. I mean, it practically defies nature. The other possibility according to the million dollar nerve conduction equipment is that there are severely damaged small to medium fiber peripheral nerves in the skin that was used to close up the amputation. Anyway, THIS IS WAR (as my BIL used to say)

End of story is I’m going in for another surgery. I’ll let you know when it is. He’s cutting the median nerve in two new places and ripping out the skin used to cover up where the toe is amputated and stretching what’s left to use. He may have to graft later if it doesn’t take and I get a wound problem. Ah, another risk I’m willing to take-wound problems. Like I said, “THIS IS WAR” and I’m not backin down until this nerve is gone for good.

I know what your thinking but I’m actually very lucky to have a surgeon willing to go thrice trying to help me. This is his last suggestion, after that-he is outta ideas. You’ve got to remember I am a complicated case with circulating immune complexes causing inflammation in my blood vessels that press on nerves and damage them. This is my particular present from lupus.

So…….that’s whats happening. 🙂

“Never doubt th…

“Never doubt that a small group of thoughtful, committed people can change the world. Indeed, it is the only thing that ever has.” – Margaret Mead.

I wore my wolf hat a friend made with my lupus sticker button on it yesterday!  Everywhere I went I was asked about LUPUS.  People ARE interested!  Talk about your LUPUS!  The more we stand up and get the word out, the more likely additional funding to find a cure!  Let’s get the conversation started!!!  From the words of The Lupus Foundation of America:  LUPUS, Help us solve the cruel mystery!!!

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Top 5 Ways To Manage Lupus Fatigue

Short music video on managing chronic fatigue with LUPUS

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Lupus Pals – All about LUPUS & Support

Short music video about LUPUS, understanding lupus, support for lupus and info about SLE.

11 Symptoms Used To Help Diagnose LUPUS

Music Video of the eleven symptoms used as a guide by physicians and the American College of Rheumatology to diagnose Systemic Lupus Erythematosis.

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